My wife is in a rare group of people

[thatguy2]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

 

[NEfarm_ranch]

Prayers sent

 

[CID]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

So sorry to hear that your Mrs. got dealt this card. Fingers crossed that she gets the real meds and that they work for her.

 

[100Acre]

I pray the Lord Jesus keeps you and your family in safety and peace.

 

[NTCPrezJB]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

🙏🏻🙏🏻🙏🏻

 

[TxDoc]

A couple of years ago, I saw where Leqembi received FDA approval and read on Medscape where it slowed the rate of cognitive decline by 27% over 18 months, in early stage Alzheimer's.

I hope and pray that this new drug will be a great thing for y'all. New tests, new preventions and gene therapy treatments are very active, although it is not generally covered by the media.

Positive thoughts, energy and prayers being sent.

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[Buggyman]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

🙏🙏 for you wife and family.

 

[Todd627]

🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼

 

[ChadD]

🙏🙏🙏🙏🙏🙏🙏🙏

 

[BBB]

🙏🙏🙏🙏🙏

 

[Scoop]

🙏🙏🙏🙏

 

[Red500]

🙏 for the best outcome possible.

 

[scttwlsn45]

My mom had Alzheimer’s and I pray you’ll have good results. I hear good things about Alzheimer’s research lately and I’m sure your wife will have a better prognosis than my mom did 15 years ago

 

[Remington]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

Scary disease my friend.
Lost my father to dementia 2yrs ago and my father in law age 87 im afraid is coming down with one of the two. We will know more in the coming months. Have watched a few of my customers deal with spouse that has this. Hoping the best for you and your wife. Stay strong and positive

 

[Alan aka Davinci]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

Give her our best and do not give up.

 

[Coeus]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

🙏🙏🙏🙏🙏🙏

 

[NewHere2]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

🙏🏻🙏🏻🙏🏻 for all of you.

 

[Hoosier1960]

IU is amazing. I have been going to the IU Cancer Center for 4 years


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[thatguy2]

IU is amazing. I have been going to the IU Cancer Center for 4 years


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We have nothing but good things to say about IU. Our experiences have been good. We have to go back in October.

 

[Alan aka Davinci]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

Sorry to hear that while hoping light at the bed do the tunnel does turn out for you both.