My wife is in a rare group of people

[Alan aka Davinci]

I will be back, have to go see the Doctor now.

 

[Admin]

 

[thatguy2]

It's pretty sad to watch. Kayaking on the pond today and she couldn't remember how to work the paddle.

 

[ChadD]

It's pretty sad to watch. Kayaking on the pond today and she couldn't remember how to work the paddle.

 

[Todd627]

 

[TxDoc]

I'm very sorry to hear that. I'm wishing that she is able to somehow experience some enjoyment and happiness from being outdoors

Sent from my motorola edge plus 2023 using Tapatalk

 

[BBB]

 

[Hoosier1960]

It's pretty sad to watch. Kayaking on the pond today and she couldn't remember how to work the paddle.

 

[Buggyman]

It's pretty sad to watch. Kayaking on the pond today and she couldn't remember how to work the paddle.

 

[dweber23tr]

Have had several relatives go through alzheimers and dementia. It sucks and is painful to watch them do it. Feel for ya man

 

[thatguy2]

 

[Remington]

View attachment 436862

Dont you love labs?
They know when things aren't right and they try there best to make you feel better.

 

[Smitty335]

My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.

I totally missed this. What is her name? I'll add her to my prayers and to our Men's group this Tuesday.

 

[Hoosier1960]

View attachment 436862

 

[thatguy2]

I totally missed this. What is her name? I'll add her to my prayers and to our Men's group this Tuesday.

Sarah

 

[Buggyman]

Sarah

for Sarah

 

[ChadD]

Sarah

 

[Smitty335]

Sarah

Sarah

 

[Mudwisel]

 

[thatguy2]

Yesterday was another infusion day.

 

[TxDoc]

Step by step. Patience is a rare virtue, but is worth the effort.
‍

Sent from my motorola edge plus 2023 using Tapatalk